I just developed the internal cramping, feeling like I was going to have. Heart attack, and severe chest pains this weekend. It is excruciating and terrifying. Thank you for writing this so I can see I’m not alone in this.
When the weather changesI am extremely affected! The changein barometricpressure is the worst. Then when the cold sets into my body there seems to be no way to get it out to reduce pain. Winter and the changing seasons are tough. Last night was rough. Today it is 65, windy and cold. I could have told you this would happen. I stay cold for so long with pain, then like frost bite, it turns to burn. Until, finally it resolves itself. I have RSD. I am thankful to have a snuggled,electric throws and a fire place. I can watch the cold from the comfort of inside my home. If we HAVE to go out, I suggest automatic starters, or an attached garage. How does everyone else feel about the cold weather coming and what are your suggestions for a smooth transition?RSD/CRPS Support
My wife Charlotte was injured at work on August 17, 2016 She slipped on a wet floor and sprained her left knee and ankle. She has been in extreme pain since that date, cannot bear weight on that leg and cannot stand to have any part of that leg touched. She is taking Gabapentin and has been taking LDN Low Dose Naltrexone for 8 days now. Her pain is getting progressively worse. Does anyone have any suggestions on how to alleviate the pain at all. She has been diagnosed with RSD/CRPS by 4 doctors and her physical therapist. But we cannot find any treatments that will help. Sympathetic Nerve Blocks have been suggested but we think the cons out weigh the pros because invasive procedures have been know to spread the pain.
Yes, I do get the picture. Wednesday was 9 years since my assault which resulted in the CRPS. The doctors in WI are far behind in knowledge. In my experience majority lack understanding of RSD and CRPS. They are very arrogant when trying to explain or even bring in research articles, plus they are greedy. You find a treatment that does help aka high dose ketamine and they want cash only. Sad how majority of the medical community is about greed and not helping people regain quality of life and functioning. What oath did they take???
There were more than a few things I learned along the way, not the least of which is that since this is a fairly rare condition, and one that has not been the subject of much research or funding, that most doctors know very little about it. I reached a point where I would ask them how much they knew about CRPS, especially if they insisted on calling it RSD. I had type 2, which is absolutely not the same as RSD, and when they would admit they didn't know all that much, that was the point where I could begin to explain things a little bit. It is difficult to explain, but they do respect knowledge--it just has to be presented in a certain way to them. The trouble with most doctors is that they are accustomed to knowing more than their patients, and having their word taken as gospel. I could go on, but you get the picture.
Thanks for explaining. doctors are more receptive with med journals than...this is what I learned. I feel we know more than 99 % of the medical people we see, at least that is the way it appears in WI Unfortunately. Thank you, wbrianiii!